Here we are in happier, more mobile times with our friend Rhett at the Dallas arboretum.  Today has been better, Liam is finally sleeping, sort of, he kind of wakes up every thirty to forty minutes from muscle spasms in his leg.  Poor boy.  Thankfully we were given a some good meds for him that seem to do the trick and help him sleep.  He took a four hour long nap today and then woke up long enough for me to feed him, change his diapers and give him more medicine.  By 7:30 he was passed out again worn out from yesterday, today and trying to cope with the fact that he is pretty much immobile.  Thank you so much for all the thoughts and prayers, it really helped.  He really has improved a lot from yesterday and just the fact that he can sleep more soundly now is amazing.  There are a lot of people I need to call and touch base with and I promise I will try to call everyone just give me a couple of days, I am almost out of minutes on my phone. ;)  Now off too bed… I am worn out too.

Here we are in happier, more mobile times with our friend Rhett at the Dallas arboretum.  Today has been better, Liam is finally sleeping, sort of, he kind of wakes up every thirty to forty minutes from muscle spasms in his leg.  Poor boy.  Thankfully we were given a some good meds for him that seem to do the trick and help him sleep.  He took a four hour long nap today and then woke up long enough for me to feed him, change his diapers and give him more medicine.  By 7:30 he was passed out again worn out from yesterday, today and trying to cope with the fact that he is pretty much immobile.  Thank you so much for all the thoughts and prayers, it really helped.  He really has improved a lot from yesterday and just the fact that he can sleep more soundly now is amazing.  There are a lot of people I need to call and touch base with and I promise I will try to call everyone just give me a couple of days, I am almost out of minutes on my phone. ;)  Now off too bed… I am worn out too.